“We ask you to help and subscribe” – Victoria Pereverzeva, mother of a deaf boy who has hope

We were approached by Victoria Pereverzeva from Riga, mother of three-year-old Victor with 5th degree of hearing loss (the boy cannot hear at all). She asks readers to take part in collecting signatures on the manabalss.lv portal so that the state will finance the maintenance of hearing aids and cochlear implants after the end of the warranty period and compensate for the purchase of batteries and rechargeable batteries.

We are publishing Victor’s story and hope that you will not remain indifferent and also put your signature so that deaf children have more hope for a full life and confidence in the future.

Nothing boded trouble

Up to a year or so, little Victor’s parents did not suspect anything. The child reacted to sounds and slowly began to speak. After the boy was one year old, Victoria began to notice that he did not always respond and the baby’s pronunciation of the first words came to naught. She shared her concerns with the pediatrician, but the doctor advised not to panic ahead of time and wait. The neurologist said about the same thing, especially since in the neurological sense, the child was all right.

They waited, they waited, but by two years there was no progress. Victoria came to the pediatrician and asked for a referral for a hearing test.

The doctor said: “Your child does not hear at all.”

On the first check, it turned out that something was really wrong. Viktor was sent for a hearing examination under general anesthesia. The survey was scheduled for November 25, 2020. “It was the worst day of our life,” Victoria recalls. She was sitting in the corridor, the doctor came out and said: “Your child does not hear at all. He only feels vibrations. ” For Victoria, of course, it was a shock. The doctor continued to explain something, but Victoria no longer perceived anything. There were tears, misunderstanding why it happened. In their family, no one faced such a disease. “We couldn’t even imagine that this could happen,” says Victoria.

Hearing loss may be caused by a genetic disorder

When they came to after the results of the examination, they began to collect the entire medical history of the baby, starting with the hospital and ending with what medications he was taking. With the information received, we turned to the Latvian Children’s Hearing Center in order to begin to understand the reasons and understand what to do next. At the moment, there is a suspicion that hearing loss may be caused by genetic disorders. Victoria says that everyone can be a carrier of changes in the auditory gene and at any time face a problem when this change manifests itself. But only genetic analysis can confirm this, the queue for which must be waited for a whole year.

Victor will have an operation to install cochlear implants

In April, the boy was fitted with a hearing aid. But with the 5th degree of hearing loss, like Victor’s, there is no sense in this. Doctors immediately warned Victoria that the child would need an operation to install cochlear implants anyway, but the boy’s parents hoped for a miracle. They thought that the device would stimulate the auditory nerve. Unfortunately, the miracle did not happen. In early September, Viktor will have an operation. “We have great fear of the operation. Nobody knows how it will go, what complications there may be. But we hope that everything will be fine and our son will start to hear, ”says Victoria.

A cochlear implant is a medical device used to compensate for hearing loss. It consists of two components – internal and external. The inner part is implanted in the inner ear, while the outer part with the processor is held on the head. The external device picks up sounds, speech and transmits them through the scalp to the inside. And according to Victoria, the problem is that this outer part is very easy to lose, especially for a child. This can even happen in a store, where the outer part of the device can become magnetically attached to shelves or racks, and the child will not notice how he loses it.

Difficulties in financing cochlear implant services

The operation to install cochlear implants for a child costs more than 20,000 euros. In Latvia, implantation is paid for by the state. There is also a two-year warranty after the operation. But, if something suddenly fails after two years, parents will need to pay for repairs or the purchase of a new device at their own expense. And this is a lot of money. Not all parents will be able to do this.

Also, in order for the device to work, batteries are needed. But regular hearing aid batteries are not the best option for a small child. They can be discharged at any time, the child can pull them out, swallow or lose them. But there is another option. These are batteries that are charged on a battery, they are more securely fixed, and there is no need to fear that the child will drop them or lose them. At the moment, the state does not compensate for the purchase of this type of batteries. At the same time, the cost of a set with charging varies from 1,000 to 2,000 euros.

Parents face a choice – let the child hear or leave him to live in deafness

“We really want our child to start hearing. But at the same time, we are frightened by the thought that a breakdown may occur or the device will be lost, and we will not be able to pay for a new purchase or repair, ”Victoria shares her experiences. The Pereverzev family has three small children and at the moment only Victoria’s husband works.

According to Victoria, there are now about 200 children in Latvia who have a cochlear implant. And some parents have already faced a problem. They are faced with the choice of letting the child hear or leaving them deaf because they cannot financially provide the service. It’s terrible to be in this situation. “We really want our son to talk, go, like all children, to the kindergarten, and then to a regular school. Therefore, we ask you to help and sign up for government funding of hearing aids and cochlear implants service after the warranty period and compensation for the purchase of batteries and rechargeable batteries, ”urges the boy’s mother.

Source: GOROD.LV – новости Даугавпилса by gorod.lv.

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